Monday, January 23, 2012

dream if you can a courtyard, an ocean of violets in bloom

BREATHE.

just reminding myself. i have been running around like crazy lately...like, up at 4am on a saturday morning to help co-ordinate the school rummage sale in the rain crazy. i am still volunteering A LOT at the kids' school, but it's so hard to say no! and all the other moms are so nice to work with! i am going to try to give myself a little bit of breathing space these next few weeks though, and let my folks take over more with my own kids, because i am getting overwhelmed...and i need to focus on my most important task of the moment - sky's health.

in december, we took our super-smart, sweet, funny (and extremely hyper, unfocused, sometimes uncontrollably enraged, sometimes severely tummy-troubled) 10yr old to a specialist - an awesome doc who specializes in natural practices and progressive treatments with kids who are autistic/asperger-esque - and did a full range of testing. here's a summation of the results we got back so far (many of which we already knew):

- HIGH allergy to dairy (even goat milk)
- moderate allergy to eggs (this one we didn't know)
- moderate allergy to gluten, wheat, spelt
- genetic deficiency that is causing his little liver to not eliminate toxins the way it should
- low potassium, low b12, possible iron deficiency

and unfortunately, he also has to have another test to check for diabetes. he was tested by his pediatrician a few months ago, but this doc is going to do a slightly more intensive test just to be sure, since he does show symptoms of it. she isn't worried about it though, so i am choosing not to be, either. and i freaked out about it enough when he had the last test, so i'm not even 'going there' till we know anything for sure. (prayers concerning this are always welcome, though!)

so...we are going back on the gluten/casein (dairy)-free diet again and eliminating eggs as well. (he was on the gf/cf diet for about 2 years and had good results from it, but we stopped the diet last year because he became SO resistant to it, and at the time we didn't know he had 'actual' allergies, just thought he was sensitive to things and would maybe outgrow it.) he is also going to take some folate and other supplements recommended by the doc, and maybe some other therapies will be included down the line once we have the full results.

we are hoping just the combo of supplements/dietary changes will help his overall behavior to land more in the 'normal' range. we already limit dairy and gluten with him, but going to the NONE AT ALL diet again will be a little tough, since he is literally the pickiest kid i know and he is VERY resistant to change! but ya gotta do what ya gotta do!

3 sweet kittens say...:

MamaFoster said...

if you don't mind, please keep us (me) up to date on how it goes...I am thinking that this is what I need to do with Elee and eventually I think I will be begging you for recipes :)

-Leah Wentzel

calamity jane said...

leah, unfortunately allergies/intolerances are so common with so many kids nowadays...what made you think that with elee?
and yes, we all need to share some good allergen-free recipes! :)

Becky @ purposefulhomemaking.com said...

Girls! I feel your pain although things are going well now. However, I just continue to pray that the Lord would keep Caleb safe (peanut, almond, Brazil nut allergy). I'm currently reading Robyn O'Brien's book The Unhealthy Truth: How are food is making us sick http://www.youtube.com/watch?v=rixyrCNVVGA and sometimes I can barely stand it b/f I start getting all anxious inside, but at the same time, knowledge lets us do something about it. Amy, have you looked into the GAPS diet.You should definitely check that out w/all of Sky's symptoms. Anyways, I hope you can get the results soon and will say a prayer. Hang in there. Mammahood is hard, but God always gives grace!! I cling to it often!